On March 4th 2022, sits in stark contrast as an improvement when compared to all of this past year. Literally, yesterday was one of the best days of my life that I have had, in a very... very long time. You might be asking what transpired, culminated or coalesced to inspire and change the prospects of my overall recovery outlook? It all started with an early AM phone call. My previous infectious disease provider's medical assistant called to ask one simple question "Do you want your new infectious disease provider to take over your care?" My, emphatic reply was: "Yes!" Now while my old ID's name appeared on my prescriptions, at least it was clear that I didn't want to work with her anymore and regardless that must be respected. I really don't care that my leg specialist isn't happy with that - I have had to endure hell and back so don't start on about how she's "one of the best ID out there... [or] She is part of my interdisciplinary...
Sorry for my last post. It was written where I was mentally down and felt dragged down by this whole ordeal. Since then a few things have happened that puts some light at the end of the tunnel and something tangibly to look forward to. To start, earlier last week my nephrologist called and we had spoken about getting me setup for some IV iron infusions. Up until now that has been a wash. I called and found out that BCH doesn't allow their assistants to enter in the orders and my actual nephrologist has to login to their portal and place the order. This means I should be receiving a call (or will call them tomorrow afternoon) to get setup for regular infusions. Hopefully this aids with the healing process. It would be great if it helped out with my energy issues (but in 2016, I noticed only a minor improvement from the ongoing CFS). Next, over the weekend, my drain switched from that serosanguineous colored fluid to purely blood there for a while. I called over the weekend to report...
Wow... it has been a while since I have journaled. The best place probably to start is with the Louisville evacuations that occurred last week. Dec 30th 2021: In the morning, I had an appointment with my new nephrologist. He was quick to point out my anemia and inflammatory markers from the infection. It was a good first impression with this specialist. Side note: fast forward to Jan 3rd, their office called to notify me I should start supplementing with iron due to the anemia, but my previous nephrologist decided to not treat it in Oct because apparently bacterial infections can feed on the the iron, and furthermore I think it is better treated with IV iron, rather than oral iron (had I had been treated in the past). When I got home, soon after I had a follow-up tele-health appointment with my infectious disease doctor. During this appointment, she rather abruptly notified me the cultures from my most recent surgery that I had an untreated e. coli. infection, in addition to the sta...
Comments
Post a Comment
Feel free to leave comments, but I remind my IRL friends and colleagues that this is the net and make conscious effort to be intentionally omissive of personally identifiable information (I know, you know, kind of thing). That way I can offer this blog up on a public-basis, without the need to make it private and invite-only, whilst still allowing those curious and more distant the opportunity to read-up as they desire.