Blog is moving!!

Public Service Announcement!! 

MY BLOG IS MOVING AND ALL POSTS WILL EVENTUALLY BE PORTED OVER

THE NEW ADDRESS IS:

https://dev.aetheryl.net

Best,

-Zach


Comments

Post a Comment

Feel free to leave comments, but I remind my IRL friends and colleagues that this is the net and make conscious effort to be intentionally omissive of personally identifiable information (I know, you know, kind of thing). That way I can offer this blog up on a public-basis, without the need to make it private and invite-only, whilst still allowing those curious and more distant the opportunity to read-up as they desire.

Popular posts from this blog

March 4th - the turning point in recovery and outlook (one of the best days of my life, in a long while); two weeks of quiescence

Image
On March 4th 2022, sits in stark contrast as an improvement when compared to all of this past year. Literally, yesterday was one of the best days of my life that I have had, in a very... very long time. You might be asking what transpired, culminated or coalesced to inspire and change the prospects of my overall recovery outlook? It all started with an early AM phone call. My previous infectious disease provider's medical assistant called to ask one simple question "Do you want your new infectious disease provider to take over your care?" My, emphatic reply was: "Yes!" Now while my old ID's name appeared on my prescriptions, at least it was clear that I didn't want to work with her anymore and regardless that must be respected. I really don't care that my leg specialist isn't happy with that - I have had to endure hell and back so don't start on about how she's "one of the best ID out there... [or] She is part of my interdisciplinary...
Read more

Finally things are looking up

Sorry for my last post. It was written where I was mentally down and felt dragged down by this whole ordeal. Since then a few things have happened that puts some light at the end of the tunnel and something tangibly to look forward to. To start, earlier last week my nephrologist called and we had spoken about getting me setup for some IV iron infusions. Up until now that has been a wash. I called and found out that BCH doesn't allow their assistants to enter in the orders and my actual nephrologist has to login to their portal and place the order. This means I should be receiving a call (or will call them tomorrow afternoon) to get setup for regular infusions. Hopefully this aids with the healing process. It would be great if it helped out with my energy issues (but in 2016, I noticed only a minor improvement from the ongoing CFS). Next, over the weekend, my drain switched from that serosanguineous colored fluid to purely blood there for a while. I called over the weekend to report...
Read more

Letting go

After nearing three weeks, since I was first informed I was experiencing iron deficiency anemia, after 8-10 back and forth calls between my nephrologist's office and BCH's infusion center/insurance team and subsequent denial: I'm resigned to the fact it's impossible to get my iron deficiency anemia addressed prior to this fifth surgery. I had been anemic and inflammatory most of last year. This is interfering with the healing (last reading was 6 and 5 is considered 'very low'). So I can only hope and pray I wake up from surgery since I'm losing blood through my drain and will lose even more blood in surgery. I'm brooding heavily with these thoughts and the thoughts of never getting through this. This is what happens when you subject a patient to 5 surgeries in 11 months... it starts to wear on a person. And one co-morbidity, the anemia is not being addressed. What's next, amputation? I just don't know what to believe in, anymore. Insurance are be...
Read more