On March 4th 2022, sits in stark contrast as an improvement when compared to all of this past year. Literally, yesterday was one of the best days of my life that I have had, in a very... very long time. You might be asking what transpired, culminated or coalesced to inspire and change the prospects of my overall recovery outlook? It all started with an early AM phone call. My previous infectious disease provider's medical assistant called to ask one simple question "Do you want your new infectious disease provider to take over your care?" My, emphatic reply was: "Yes!" Now while my old ID's name appeared on my prescriptions, at least it was clear that I didn't want to work with her anymore and regardless that must be respected. I really don't care that my leg specialist isn't happy with that - I have had to endure hell and back so don't start on about how she's "one of the best ID out there... [or] She is part of my interdisciplinary...
Wow... it has been a while since I have journaled. The best place probably to start is with the Louisville evacuations that occurred last week. Dec 30th 2021: In the morning, I had an appointment with my new nephrologist. He was quick to point out my anemia and inflammatory markers from the infection. It was a good first impression with this specialist. Side note: fast forward to Jan 3rd, their office called to notify me I should start supplementing with iron due to the anemia, but my previous nephrologist decided to not treat it in Oct because apparently bacterial infections can feed on the the iron, and furthermore I think it is better treated with IV iron, rather than oral iron (had I had been treated in the past). When I got home, soon after I had a follow-up tele-health appointment with my infectious disease doctor. During this appointment, she rather abruptly notified me the cultures from my most recent surgery that I had an untreated e. coli. infection, in addition to the sta...
Preface: I will include some silver lining, to what will otherwise be a post written in negative tone about the ongoings of what has brought us to this point. However, I will state that this will go down as one of the worst days of my life (whether it translates fully manifested into reality, or not). My appointment with my leg specialist was prefaced with my own expectation that the visit would not go over well, interrogative on why I was switching infectious disease doctors. At the same time from talking with my Mom, she reframed it by adding some positivity of thinking (rather optimistically) that my leg specialist would have taken my side and agreed that my infectious disease doctor was negligent in her dismissiveness of this untreated e. coli and be upset about this situation to my benefit. Instead, I found that we met with the usual introductions when they came into the room. My limb specialist and her assistant came into the room. First on the agenda was looking at the leg....
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